Rare Disease DayRare Disease Day takes place on the last day of February every year. It was first launched by EURORDIS and its Council of National...
Final Stretch!This morning started hectically. I was to have a right heart cath done around 1:30 pm but they came in early this morning, woke me up,...
Admitted AGAIN!Made it six days this time! Unfortunately, Cleveland Clinic has become home away from home. Last Friday (February 3, 2017) I weighed...
My Diseases ExplainedMy primary disease is P.V.O.D or, Pulmonary Veno Occlusive Disease. Only 1-2 people PER 10 million people have it in the world. So...
Life Altering News12:34 pm, January 27, 2017... a moment forever burned in my memory. Leading up to this moment I had been admitted to the hospital, AGAIN....
